Privacy Policy

Last updated: Jan 23, 2024 8:26 AM

We value your privacy very highly. Please read this Privacy Policy carefully before using the https://www.ilads.org/ Website (the "Website") operated by International Lyme and Associated Diseases Society (ILADS), a(n) Nonprofit formed in Maryland, United States ("us," "we," "our") as this Privacy Policy contains important information regarding your privacy and how we may use the information we collect about you.

Your access to and use of the Website is conditional upon your acceptance of and compliance with this Privacy Policy. This Privacy Policy applies to everyone, including, but not limited to: visitors, users, and others, who wish to access or use the Website.

By accessing or using the Website, you agree to be bound by this Privacy Policy. If you disagree with any part of the Privacy Policy, then you do not have our permission to access or use the Website.

What information we collect, where we get this information, how we use this information, what happens if we don't have it, and the legal basis for processing this information

We collect any and all information that you enter on this Website. In the last 12 months, we have collected the following information about individuals using our Website:

Please see the "Your Rights" section below for more information about exercising your privacy rights related to profiling and targeted advertising.

With whom we share your personal information

In the last 12 months, we have disclosed and shared the personal information below with the following third parties for the following reason(s):

Sharing of your information

ILADS grants permission to outside organizations, institutions, or individuals to use its mailing list (mail and email) for the purpose of distributing catalogs, flyers, announcements, etc., which are of a professional interest to those on the list. Such permission is for rental only. The lists are not sold, and they may not be duplicated. You may opt-out of sharing your information at any time. The information shared includes name, mailing address and email. Please see the "Your Rights" section below for more information about exercising your privacy rights regarding sharing of your personal information.

Cookies

A cookie is a small piece of data sent from a website and stored on your device by your browser. This Website collects cookies and may use cookies for reasons including, but not limited to:

• Analyzing our Website traffic;
• Analyzing your interactions with advertisements;
• Identifying if you are signed in to the Website;
• Testing content on the Website;
• Storing information about your preferences;
• Recognizing when you return to the Website.

Most web browsers automatically accept cookies. However, you can modify your browser settings to decline cookies, if you prefer. This setting may prevent you from taking full advantage of the Website.

Children's privacy

This Website is intended for use by a general audience and does not offer services to children. Should a child whom we know to be under 18 send personal information to us, we will use that information only to respond to that child to inform him or her that they cannot use this Website. We do not sell the personal information of minors under the age of 16.

Analytics programs

This Website uses Google Analytics to collect information about you and your behaviors. If you would like to opt out of Google Analytics, please visit https://tools.google.com/dlpage/gaoptout/.

Information retention

We retain the following personal information for the following periods of time:

Your rights

All visitors or users of this website have the following rights with regard to their personal information:

1. The right to opt out of use of your personal information for the purposes of targeted advertising.
2. The right to access the personal information that we have collected about you.
3. The right to know what personal information we have collected about you, including the categories of personal information, the categories of sources from which the personal information was collected, the business or commercial purpose for collecting, selling or sharing personal information, the categories of third parties to whom we disclose the personal information.
4. The right to know whether your personal information is sold or disclosed and to whom.
5. The right to say no to the sale of your personal information.
6. The right to opt out of the sharing of your personal information.
7. The right to opt out of the use of your personal information for the purposes of profiling in furtherance of decisions that produce legal or similarly significant effects concerning you.
8. The right to request that we delete all or some of the personal information that we have collected on you.
9. The right not to be discriminated against based upon your exercise of your privacy rights.
10. The right to equal service and price, even if you exercise your privacy rights.
11. The right to ask us to transmit your personal information that we have collected on you to another provider (where technically feasible).
12. The right to request that we amend any of the information that we have collected about you.
13. The right to withdraw your consent to the processing of your data.
14. The right to request that we restrict the processing of your data.
15. The right to lodge a complaint regarding our collection, sharing and processing of data with competent authorities in the proper jurisdiction.
16. The right to stop receiving unwanted direct marketing.
17. The right to request your personal information in a portable and, to the extent feasible, readily usable format that allows you to transmit that information to another entity.
18. The right to limit the use and disclosure of your sensitive personal information.
19. The right to receive the personal information that we hold about you in a portable and, to the extent feasible, a readily usable format that allows you to transmit this information to another entity.

Exercising your rights

You may exercise the rights specified above by submitting a consumer request to:

Jenni Moyer
Director of Operations
jmoyer@ilads.org
(301) 263-1080
2 Wisconsin Circle, Suite 700 Chevy Chase, MD 20815-7007
United States

If you opt-out by contacting us as stated above, your preference will be applied to your account and our databases, including offline sales.

We will need to verify your identity prior to effectuating your request. To verify your identity, you will need to provide us with the following information with your request:

• Name;
• Postal / Shipping address;
• Phone number.

Please note that we may be unable to process your request if you do not provide us with the above information.

You may also designate an authorized agent to exercise your rights on your behalf. You may designate an agent via any of the ways used to submit requests on your behalf. We will request the agent to verify that he or she has the authority to submit requests on your behalf. We will do so by asking the agent to submit the following information:

• Valid power of attorney;
• The requester's valid government-issued ID;
• The authorized agent's valid government ID.

Please note that we may not be able to process your request if your designated agent and/or you do not provide us with the above information.

We will respond to most consumer requests within 30 to 45 days of receipt, depending upon where you reside. However, some requests may take longer. We will notify you in writing if we need more time to respond. We have the ability to deny your request(s) if certain exceptions in the law apply. If we do deny your request, we will provide you with the reasons for such denial.

You have the right to appeal a refusal to take action on a rights request. You may file an appeal to us at the contact information provided above. We will respond to most appeal requests within 45 days to 60 days of receipt, depending upon where you reside. However, some requests may take longer. We will notify you in writing if we need more time to respond (up to 90 days total). In our response to your appeal, we will inform you of any actions taken or not taken and the reason(s) as to why. Normally, we do not charge a fee to process or respond to consumer requests. However, we may charge a fee for a second or subsequent request within a 12-month period.

Accountability

The following person is accountable and responsible for our privacy practices and procedures:

Jenni Moyer
Director of Operations
(301) 263-1080
jmoyer@ilads.org

You may lodge a complaint with us by contacting the person accountable and responsible for our privacy practices and procedures at the contact information above. You may also lodge a complaint with the Office of the Privacy Commissioner of Quebec by filling out this form or calling 1-888-528-7741.

Location of data processing

All data processing activities undertaken by us take place in United States.

Third-party websites

This Website may contain hyperlinks to websites operated by parties other than us. We provide such hyperlinks for your reference only. We do not control such websites and are not responsible for their contents or the privacy or other practices of such websites. It is up to you to read and fully understand their Privacy Policies. Our inclusion of hyperlinks to such websites does not imply any endorsement of the material on such websites or any association with their operators.

Transferring Data

We plan to transfer data to the United States. This means that your information may be processed in a country outside of Quebec and it may be accessible to law enforcement authorities and national security authorities of that country and jurisdiction.

Questions

If you have any questions about this Privacy Policy, please contact us at contact@ilads.org.